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Life in Spite of MS Blog

The Life in Spite of MS Blog is our written experience about living with MS. It...

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Meet Steven Mueller - Again!

Steven Mueller and Lauryn

Since we last met Steven Mueller, a lot has changed in his life. See the updates he has to share with his new wife.

Continue reading "Meet Steven Mueller - Again!"

Meet Julie Blackburn

Julie Blackburn - Spoonie Day

Meet Julie Blackburn, creator of the Spoonie Day App! Learn a little about her and why she created the app for people just like you.

Continue reading "Meet Julie Blackburn"

Neurostimulator to Repair Myelin Sheath

Components of a Neuron

Wow! A neurostimulator to repair myelin sheath may be the next stage in the treatment of MS. One that may restore damage and not just slow it down.

Continue reading "Neurostimulator to Repair Myelin Sheath"

Of Curbs and Cutaways

Woman Writing in her Journal

Of Curbs and Cutaways is an essay about an experiece we had several years ago. I hope you enjoy reading it.

Continue reading "Of Curbs and Cutaways"

Multiple Sclerosis Awareness Month 2024

MS Awareness Ribbon on Blue Background

It's here! Multiple Sclerosis Awareness Month 2024. What's on the agenda this year? Among other things, mental health.

Continue reading "Multiple Sclerosis Awareness Month 2024"

Plant-Based Diet

plant-based word img

A plant based diet and MS is not a new thing. To the contrary, it has been around for several years.

Continue reading "Plant-Based Diet"

MS Awareness Shop

MS Awareness Shop

The MS Awareness Shop is where you'll find all those accessories to create awareness of multiple sclerosis, one mug at a time

Continue reading "MS Awareness Shop"

MS Jewelry Shop

MS Awareness Ribbon

Our MS Jewelry Shop is where you can find pins, bracelets, pendants, and more - jewelry with a multiple sclerosis theme.

Continue reading "MS Jewelry Shop"

As I See It!

MS is SHIT I fucking hate IT I no longer WALK Thank god I can TALK It’s messed up my LIFE I’m no longer a WIFE Trapped in my HOUSE I feel like a LOUSE

Continue reading "As I See It!"

Microparticles Reversed Physical Disability in MS Mouse Models

Mouse Cute

Microparticles reversed physical disability in a mouse model at Johns Hopkins School of Medicine

Continue reading "Microparticles Reversed Physical Disability in MS Mouse Models"

Lola Falana Part 2

Gino_Bramieri_and_Lola_Falana

In Lola Falana Part 2 you'll be able to watch more of her available interviews, find links to movies or ways to buy them.

Continue reading "Lola Falana Part 2"

Low Dose Naltrexone

I started going to a naturopath after my GP refused to entertain any notion of using LDN, and he started me on it in 2017. I've used it ever since, and

Continue reading "Low Dose Naltrexone"

Remember

I can't remember the last time I remembered to remember the thing I often forget. I can't remember the last time I recaptured a story from my past and

Continue reading "Remember"

Conjure Comix Kickstarter

Hello visitors, fellow MSr’s, and caregivers, this is a somewhat unusual post, however, Cir and I would love for you to share in our excitement for our son’s recent accomplishments. As a child, Cir Jr loved comics, receiving them for gifts and subsequently devouring them. He loved Captain Planet because the character wanted to save the planet and create a sustainable future for humanity.

He loved the format with its action-packed artwork - the story told in words and graphic pictures with all the excitement of a movie in physical form. As a result of his love for this artform, he spent hours creating characters and worlds from his own imagination, ultimately merging his passion for social justice and comics, to give birth to the project he is now promoting via Kickstarter.

The project, a comic book publishing company, called Conjure Comix, and the story behind it, won the local 2019 Knights Art Challenge with a $60,000 grant prize contingent upon raising matching funds of $30,000 to bring his dream to life. As we all know, the following year, 2020. put a halt to many activities, including Cir Jr's dream of starting his publishing company.

The pandemic did add a new perspective to his project when we saw how marginalized groups were disproportionately affected by COVID, including those with disabilities due to conditions like MS, the African American community, the LGBTQI community, and others. He saw a need for an accessible and easy way to learn about social justice issues through comic books, tracts, and graphic novels.

My hope is that you will join us and pledge as we have, to help get his company off the ground and spread his vision around the world. We also hope that you will share the Kickstarter link with your friends, family, and acquaintances as well.

As a child with a parent suffering from MS, Cir Jr, as well as his siblings, faced tremendous odds at a young age as they watched their father deal with the effects of multiple sclerosis. It directly affected them and the choices they’ve made in their lives as grownups. Cir Jr and his siblings have developed empathy for marginalized groups within our society and want to advocate for and make others aware of what it’s like to live with a disability or as a member of one of those groups.

Cir Jr’s contribution was to create Conjure Comix. Please click on the link above or below to read and listen to his story and help support his dream of creating tracts and graphic novels as you are able. Share it with your family and friends. You’ll be glad you did.

Continue reading "Conjure Comix Kickstarter"

Selma Blair

Selma Blair

Selma Blair is an American actress who has MS. She shares her journey in her documentary, "Introducing Selma Blair".

Continue reading "Selma Blair"

John King

John King revealed to the world that he had multiple sclerosis on October 19th of 2020. Who new?

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Cir's 5 Year Tysabri Update

Hi Dear Vistor, A quick update on Cir's Tysabri journey. As you can see from the title of this post, Cir has been taking it for about 5 years now. We

Continue reading "Cir's 5 Year Tysabri Update"

The Starch Solution

potatoes starch solution

The Starch Solution

Continue reading "The Starch Solution"

Slight Decline

Eyes fall from above, Looks intended to show love. Missed connections brought to light, Body and brain continue to fight. Look down, heart pound Grass

Continue reading "Slight Decline"

MS and COVID19

womanandchildwithmask.jpg

Wondering about MS and COVID19? Here is a video to answer your questions by the National MS Society.

Continue reading "MS and COVID19"

A Vaccine for MS

biontecvaccine.jpg

A vaccine for MS is currently in the works. Wouldn't it be great if there were a vaccine that could prevent and possibly reverse MS? Find out about it here.

Continue reading "A Vaccine for MS"

Balancing MS

The balancing act of life with no balance. Adjusting to PPMS with tragic optimism. Since being diagnosed, I have thought a lot about the duality of

Continue reading "Balancing MS"

Downloading Songs

Hi! Fans, when you download any of my songs, all proceeds go to Life in spite of MS. Thanks alot for being a fan, I sure do appreciate it. Vince

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Cir's 4th Tysabri Update

Cir's 4th infusion of Tysabri went well. No video again - hopefully next time. Also, no adverse reactions and still on an uphill as far as feeling more

Continue reading "Cir's 4th Tysabri Update"

MS Poll of the Month

MS Poll ballot box

Here's your MS Poll of the Month! Come by and take a new poll every month. Find out what others have answered from past polls. Come on, it'll be fun!

Continue reading "MS Poll of the Month"

Thank you, Montel, very much!

I watched your blender ad a few years ago and was impressed. I had no idea you had a medical condition you were grappling successfully with at the time.

Continue reading "Thank you, Montel, very much!"

Mothers of Tacoma Washington Next Chapter Family

These are our moms

Dear Mr Montel Williams, I am writing to you on behalf of our single homeless moms in Tacoma, Washington - the moms of Next Chapter Family, that opened

Continue reading "Mothers of Tacoma Washington Next Chapter Family"

Agent Anonymous

My journey has been long and arduous. I am hanging in there, though. It takes every ounce of my inner strength to get through each day. I have been challenged

Continue reading "Agent Anonymous"

Top Ten at Life in Spite of MS

Top Ten Award

Top Ten at Life in Spite of MS, Top 10 Pages, 10 Most Visited - Here you'll find the 10 Top Pages on our site! Check them out!

Continue reading "Top Ten at Life in Spite of MS"

CCSVI is Ineffective Update

model neck vein

CCSVI is ineffective according to Dr Zamboni. He recently published a paper in JAMA, showing that, after doing a double blind study, CCSVI doesn't work.

Continue reading "CCSVI is Ineffective Update"

When MS knocks at your door

Life comes with many opportunities, it all depends on one’s choice on how to design or weave it. You either choose to fight or surrender, this is a story

Continue reading "When MS knocks at your door"

Other Drugs and MS

If you take other drugs for other conditions or symptoms besides MS, then you may run into problems, especially if those drugs are addicting.

Continue reading "Other Drugs and MS"

My VoxxLife Socks

VoxxLifeLogo

Here's My VoxxLife Socks Story...., so far. If socks are your thing, then you're in for a treat when you hear my story.

Continue reading "My VoxxLife Socks"

Recently diagnosed

Hi Montel, I've just been diagnosed with RRMS. I was looking at the medications the other night and the side effects scare me. I was just wondering if

Continue reading "Recently diagnosed"

Thoughts of you

How could I have thought How could I've ever known That when I first laid my eyes upon you That my feelings would be so strong Strong and what I believe

Continue reading "Thoughts of you"

MS Dropout

My ms story started very early in my childhood. I always knew there was something wrong with my health, even when no one believed me. The headaches I experienced

Continue reading "MS Dropout"

Get a hobby, I do videos

Since my brother has had MS he does videos with his dog, he is an amazing trainer and his dog is super smart. View videos on YouTube, they are funny and

Continue reading "Get a hobby, I do videos"

Live with purpose

Every time I see an interview that someone has done with you, I find it very inspiring. I love that you live your life with purpose and intention. The

Continue reading "Live with purpose"

Thank you Montel and a request

I am a volunteer veterans advocate in upstate New York. I want to say thank you for your service to our country. My late husband was a Navy Vietnam veteran

Continue reading "Thank you Montel and a request"

Colors

After being diagnosed with multiple sclerosis and having a terrible accident that severely damaged the use of my left hand, I found my therapy through

Continue reading "Colors"

Buy Me a Coffee at ko-fi.com

Dear Friends,

"Life in Spite of MS is a participant in the Amazon Services LLC Associates Program, an affiliate advertising program designed to provide a means for sites to earn advertising fees by advertising and linking to Amazon.com. We're also part of the Ebay Partner Network, another affiliate program."

We'd also like you to know it doesn't cost one cent more  when you click through the links here on our blog. Not one single penny. And we will make a little extra cash when you do click through. We'll be ever so appreciative. You also have our word that we'll only link to things that we would use ourselves, (or wish we could have or use).

Sincerely,

Cir & Akrista

You are reading original content written by Akrista or Cir L'Bert of Life in Spite of MS. If you enjoyed reading this blog, please consider following us on Facebook, Twitter, Pinterest, and Instagram. See you there!


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